Raremark
The first social network for patients suffering from rare diseases
Challenge
Sharing of information on rare diseases is very limited and patients often find themselves isolated from one other.
Intervention
Raremark has created a social network for patients affected by rare diseases allowing families to remain up-to-date on the latest research and on new treatments being tested, as well as to share their experience.
The company gathers data on an anonymous basis that can be shared with research institutions and pharmaceutical companies to develop drugs for the cure of rare diseases.
Impact
Increased interaction between patients affected by rare diseases to facilitate the sharing of experience and information.
Contribution to the collection of quality data to assist pharmaceutical research in the cure of rare diseases.
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