Cloud-R
A unique global register for patients affected by rare diseases, shared by patients, doctors and research institutes.
Challenge
In Italy the sharing of information on rare diseases between medical centres, researchers and patients is very limited.
Each entity operates independently.
Intervention
Cloud-R has developed a rare disease register that collates, on an international basis, information available on different pathologies.
Using an App, patients can register all the major events related to their illness and share them in real time with doctors.
Impact
Increased awareness for patients and the scientific community thanks to the management and use of patient data in a simple and effective way.
Greater cooperation between patients, doctors and research centres thanks to the sharing of information that would otherwise be difficult to access.
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